Every parent loves to watch their child fly like a butterfly and discover the world. Although five-year-old Ollie’s variation of CACNA1C means he is developmentally one year old, he plays independently, attends half-days at school, and loves books, especially ones that contain faces. Read more about Ollie’s story and how he found his variant twin: A Variation of CACNA1C,Continue reading “Ollie”
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Support group
Some families have shared their thoughts on why our support group is so important to them. Being part of this group has allowed us to receive an automated external defibrillator (AED), which saved Aurora’s life when she went into tachycardia at home at age 2. We learned about magnesium oxide from a member of the group, whichContinue reading “Support group”