Support us

As a charity, we rely on our supporters to help raise awareness of CACNA1C-related disorders including Timothy Syndrome and LongQT8.

Spreading awareness and funding more research is crucial to improving diagnosis, treatment and care.

There are many ways you can help, such as:

Make a donation

All funds raised go directly towards helping families affected by CACNA1C-related disorders including Timothy Syndrome and LongQT8 all over the world. We don’t pay any wages or bonuses.

With the help of your donations, we are able to:

  • hold our family day event and conferences
  • provide reliable information to people who need it, online and in print
  • maintain our worldwide CACNA1C patient registry to drive research.

Donate in the US

All donations via our GlobalGiving project page are tax-deductible for donors who are US taxpayers, and all projects on have been pre-qualified for 501(c)(3) equivalency status.

Donate in the UK

As a registered charity, Timothy Syndrome Alliance can claim Gift Aid. If you are a UK taxpayer, we can claim an extra 25p from HMRC for every £1 you donate. Gift Aid can be processed via CAF, who we trust to handle the processing of our online payments. GlobalGiving can also process Gift Aid.

Learn more about how your donation will help.

Support us while you shop online

Easy fundraising

You can also support us while shopping online via easyfundraising.

  1. Visit easyfundraising and set Timothy Syndrome Alliance as your chosen charity.
  2. Shop at one of the 3,300 retailers on board and we will receive a donation at no extra cost to you.

Give as you Live

Help us raise funds while you shop online with Give as you Live.

Leave a gift in your will

Leaving a legacy to us will safeguard our essential work. If you feel that you would like to support us in this way, and we realise that it is a big commitment, please contact us.

Follow us on Facebook

Head to our Facebook page to:

  • keep up to date with our latest news and events
  • raise awareness among your network of friends and family

Create a fundraiser on Facebook

A Facebook fundraiser is a great way to raise funds, but also to raise awareness.

To set up your fundraiser, click the ‘Create fundraiser’ button on the TSA Facebook page.

For more information on how to create a fundraiser, see How do I start a fundraiser on Facebook?

Share our short film

We made a short film to introduce people to Timothy Syndrome and to tell some of our stories.

We were honoured to win the award for ‘Best Aspiring Filmmaker – Voluntary Group Collaboration’ at the Rare Film Festival | Rare Disease UK.

The film also received official selection for Disorder: The Rare Disease Film Festival. After the festival was postponed due to COVID, the film was added to the Disorder Channel on Amazon Fire and Roku.

The film won a Bronze Award at the PM Society Digital Awards 2020, a Silver at the 2021 PM Society Awards and was a Finalist at the International Rare Disease Film Festival – Berlin.

By sharing this film, you can help us continue to raise awareness.

Make a donation

Children with Timothy Syndrome desperately need early diagnosis, treatment and care.

Your contribution will help:

  • raise awareness to drive research and clinical development
  • enhance scientific understanding
  • reduce the isolation faced by families

With your help, treatment and a cure for future generations is closer to being found.

See other ways that you can support us.