The diagnosis of a rare disease emotionally impacts all areas of life. The focus of care, however, is often just managing the physical symptoms.
With Rareminds we are helping build the emotional resilience and wellbeing of our CACNA1C community through our ‘Mind the Gap’ parent & carer groups and individual/couples counselling.
Delivered by qualified, specialist therapists and designed to address the key challenges in our rare journey.
Download the documents below for more details.
This work has been made possible by an award from Postcode Local Trust, a grant-giving charity funded entirely by players of People’s Postcode Lottery.
Make a donation
Children with Timothy Syndrome desperately need early diagnosis, treatment and care.
Your contribution will help:
- raise awareness to drive research and clinical development
- enhance scientific understanding
- reduce the isolation faced by families
With your help, treatment and a cure for future generations is closer to being found.
See other ways that you can support us.